Research Study Goals and Priorities
The overall goal of this RRTC is to pursue a systematic line of research and to build future capacity through training, technical assistance, and dissemination to diverse audiences. Research studies are designed to achieve the following:
1) Adapt diagnostic, health, and health-related quality of life measures to increase self-report in adults with IDD;
2) Determine the prevalence of mental and/or behavioral health concerns and health outcomes among adults with IDD; and
3) Develop best practice guidelines for psychotherapy to advance mental health treatment and interventions for adults with IDD.
Learning Collaborative on Engaging People with IDD in Health Research
The Nisonger RRTC Learning Collaborative consists of two inter-connected panels that work alongside investigators:
The Disability Experience Expert Panel (DEEP) is made up of adults with intellectual and developmental disabilities who provide input into each of the proposed research studies and knowledge translation activities of the center. DEEP members contribute to the RRTC success by ensuring that 1) we are asking the right questions, 2) our questions are cognitively accessible and user-friendly for adults with IDD, and 3) we leverage our research findings to positively impact the adults with IDD and the field.
The Research Experience Expert Panel (REEP) engages some of the best thinkers from multiple perspectives to address the difficult problem of adapting instruments and procedures to allow adults with IDD to reliably report on their own health, well-being, and health related quality of life.
Training, Technical Assistance, and Dissemination Activities
Project staff and DEEP and REEP panels will engage in participatory action research as a Learning Collaborative (LC) to guide the design, implementation, evaluation, and improvement of a comprehensive and integrated system of training, technical assistance (TA) and dissemination activities.
1. Train pre/service professionals, people with intellectual and developmental disabilities, and scientific community on activities and outcomes.
2. Monitor and evaluate project and facilitate outreach to government and health care organizations.
3. Translate knowledge and promising practices in multiple venues to multiple audiences