LEND Leadership Projects
Leadership Projects are part of the core curriculum for all our LEND trainees. As such, every trainee participates in at least one Leadership Project during their LEND training. LEND faculty meet annually to develop leadership projects on a variety of public health or clinical topics of importance to individuals with neurodevelopmental disabilities and their families. In addition to learning about healthcare topics of significance, trainees develop leadership skills as they participate on a project with faculty and trainees from multiple disciplines. Most projects culminate with a poster which is presented by the trainees at the Ohio MCH Poster Day.
2019-2020 Projects
Carly Nelson, B.S., Gili Ornan, B.S.
Contact – Paula Rabidoux – paula.rabidoux@osumc.edu
• Multiple guidelines exist with varying level of detail
• No clear workflow regarding who should discuss genetics
• Collaborative, multidisciplinary team based approach is needed
• Parents are interested in genetics information
• Providers are interested in a CEU on genetics of newborn HL
Cara Barnett, BS, Elizabeth Jordan, MMsc, LGC, Prashant Malhotra, MD FAAP, Allyson VanHorn, MPH, MEd, John Myers, MS
Contact – Dawn Allain – dawn.allain@osumc.edu
various topics promoting a healthy lifestyle with focus on pregnancy or parenting.
Tracey Manz, Dee Adedipe, Michael Valentino, Emma Beaver, Kelly Tanner & Margaret Rosencrans
Contact – Kelly Tanner – kelly.tanner@osumc.edu
supports for individuals with Williams syndrome.
Rebecca Kirchner, M.A., Kristin Dell’Armo, M.A., Dee Adedipe, B.A., Lee Ann Magiera, PT, DPT, Juan Lozano, M.D., M.S., Jennifer Walton, M.D., MPH., Marilee Martens, Ph.D.
Contact – Jennifer Walton – jennifer.walton@osumc.edu
additional barriers. Negative outcomes associated with low SES/high ACE households in Franklin County is what drove the creation ofMoms2B in 2010 by Ohio State University, a program in Franklin County to support pregnant moms and parents of children up to age 1. Given their increased risks, more programming was needed to continue supporting these families once they exit out.
Courtney Sexton, Margaret Rosencrans, & Bethany Frick
Contact – Lori Grisez – lori.grisez@osumc.edu
Children and adults with intellectual and developmental disabilities (I/DD) are often not included in the evaluation of health promotion activities. Research has extensively documented people with I/DD experience health disparities including a high prevalence of secondary conditions such as obesity, hypertension, and gastrointestinal issues. Research has demonstrated that creating health promotion programs, and including the I/DD community in these programs is one way to reduce health disparities. Rising Up Strong was a Summer Health Promotion Program that strived to increase health and wellness knowledge, promote a healthy lifestyle, and encourage autonomy over one’s health in youth with I/DD.
Christine Chilaka, Victoria Chavez, M.A., Jill Crane, M.A., and Susan Havercamp, Ph.D.
Contact – Susan Havercamp– susan.havercamp@osumc.edu
state departments of developmental disabilities. A difficulty hiring and retaining direct support professionals (DSP), sometimes referred to as the Direct Support Workforce Crisis, is one of the most
significant barriers to providing support for individuals with intellectual & developmental
disabilities (ID/DD) nationwide (ANCOR, 2017). Remote support services are a relatively new and growing service that uses technology to support individuals with developmental disabilities who receive support and services (e.g., Homemaker Personal Care services) in the home. For adults with ID/DD who want to reduce the physical presence of staff in their home, remote support technologies can meet a wide range of support needs, including those of people with the most severe health care needs. This study is a novel investigation into the nationwide trend toward the provision, implementation, and use of remote technologies to support people with ID/DD.
Gili Ornan, Jordan Wagner, Marc Tassé, Ph.D.
Contact – Marc Tassé – marc.tasse@osumc.edu
● participants and researchers are equally engaged in the research process
● there is co learning
● participants are empowered through the research process
● participants’ capacity to participate in decisions that influence their lives increases
● balance between the research and action taken to address the problems being examined
Carly Nelson, BS; Madison Piccinich, BSSW; Allison Danko, BS; Ann Robinson, BS; Susan Havercamp, PhD; Andrew Buck, MA
Contact – Susan Havercamp– susan.havercamp@osumc.edu
2018-2019 Projects
Jessy Thomas BA1, Andrea Witwer PhD1, Michelle Roley-Roberts PhD1, Jenna DeCarlo BA1, Riane Ramsey BA1, Stephanie Weber PsyD2, Pam Williams-Arya MD2, Anne Tapia MSW, LSW2, Leah Benjamin BA2, Lydia Wall MSW, LSW2, Canyon Hardesty MS, CHES2, Eric Moody PhD3, Sandy Root-Elledge MA3
The Ohio State University Nisonger Center 1, Cincinnati Children’s Hospital Medical Center 2, Wyoming Institute for Disabilities 3
Contact – Andrea Witwer – andrea.witwer@osumc.edu
Michelle Roley-Roberts PhD1, Jenna DeCarlo BA1, Riane Ramsey BA1, Hanein Edrees MD2, Jessy Thomas BS1, Felicia Foci MSOT2, Jennifer Walton MD, MPH1, Stephanie Weber PsyD2, Andrea Witwer PhD1
The Ohio State University Nisonger Center 1, Cincinnati Children’s Hospital Medical Center 2
Contact – Andrea Witwer – andrea.witwer@osumc.edu
Leah Benjamin BA2, Hannah Dinnen MA, MEd2, Lydia Wall MSW, LSW2, Jenna DeCarlo BA1, Riane Ramsey BA1, Michelle Roley-Roberts PhD2, Jessy Thomas BS1, Anne Tapia MSW, LSW2, Steph Weber PsyD2, Pam Williams-Arya MD2, Andrea Witwer PhD1
The Ohio State University Nisonger Center 1, Cincinnati Children’s Hospital Medical Center 2
Contact – Andrea Witwer –andrea.witwer@osumc.edu
Natalie Ritter BA, David Ellsworth MPH, CHES, Cara N. Whalen Smith PT, DPT, MPH, CHES
Contact – David Ellsworth – david.ellsworth@osumc.edu
Grace Reifenberg OTD, OTR/L, Soo Youn Kim MA, Julia Mazzarella PT, DPT, Natalie Ritter, BA, Kelly Wilton BA
Contact – Julia Mazzarella – julia.mazzarella@osumc.edu
Donna E. Green BA, Jesse Strickler BA, Ann Robinson BS
Contact – Ann Robinson – ann.robinson@osumc.edu
Laiken Peterson BS1, Amy Siemon MS, LGC2, Kim McBride MD, MS2, Dawn Allain MS, LGC1
The Ohio State University 1, Nationwide Children’s Hospital 2
Contact – Dawn Allain – dawn.allain@osumc.edu
Kim Baich, David Ellsworth MPH, CHES
Contact – David Ellsworth – david.ellsworth@osumc.edu
Kelly Rich BS1, Jesse Strickler BA1, Braden Gertz1, Allison Macerollo MD2, Jennifer Walton MD, MPH1&2, Jill Crane MA1, Todd Lash MA2, Ann Robinson BS1, Jessica Prokup, BS1&2, Susan Havercamp PhD1
The Ohio State University Nisonger Center 1, The Ohio State University College of Medicine 2
Contact – Jennifer Walton – jennifer.walton@osumc.edu
April Horstman BS, Kasey Hageman BS, Ellen Cook, Linda Rittenhouse
Contact – Ellen Cook – tamncook@gmail.com
2017-2018 Projects
Katherine Ratino BA, Bethannie Golden BS, Jamie McGrath BSSW LSW, Stephanie Hosley MS RN CPNP, Dr. Deborah Steward PhD RN
Contact – Stephanie Hosley – hosley.8@osu.edu
Michelle E. Roley-Roberts, PhD, Felicia Foci, MSOT, Michael Storts, BA, Brooke Nightingale, BS, Hanein Edrees, MD, Jennifer Walton, MD, MPH, Andrea Witwer, PhD , Stephanie Weber, PsyD.
Nisonger Center LEND Program, Department of Psychiatry & Behavioral Health, The Ohio State University Wexner Medical Center, Columbus, Ohio
Cincinnati LEND Program, Cincinnati Children’s Hospital Medical Center, Cincinnati, Ohio
Contact – Andrea Witwer – andrea.witwer@osumc.edu
Maria Baldino MS, OTR/L, Helen Carey PT, DHSc, Nicholas Kelly PT, DBT, Karen Ratliff-Schaub MD, MBOE, Kelly Tanner PhD, OTR/L
Contact – Helen Carey – helen.carey@osumc.edu
Susan M. Havercamp, PhD, FAAIDD, David Ellsworth MPH CHES, Sabrina Moxcey BA, Jamie McGrath BSSW LSW, Ann Weidenbenner MS RDN LD
Contact – Susan Havercamp – susan.havercamp@osumc.edu
Minje Kim, MA, Marc J. Tassé PhD, Jordan B. Wagner
Contact – Marc Tassé – marc.tasse@osumc.edu
Sabrina Moxcey, B.A., Wendy Scott, B.S. Colleen Tullis, M.Ed, Ann Robinson, Susan M. Havercamp, PhD, FAAIDD, Karen Ratliff-Schaub, MD, MBOE
Contact – Susan Havercamp – susan.havercamp@osumc.edu
TOPS students will participate in a stress management seminar and subsequent interventions targeted at identifying and reducing stress symptoms associated with academics and employment. This project is designed for two purposes: (1) to increase student awareness of stressful situations and stress symptoms and (2) to improve their ability to utilize coping strategies to reduce stress. This project is intended to be a supplement to current TOPS curriculum for selected students to enhance their socio-emotional behaviors in relation to academic and employment settings. This program will utilize a non-randomized methodology to determine how the stress management intervention impacts perceived stress and employment-related abilities. Student satisfaction with the stress management intervention will be shared.
Contact – Margo Izzo – margo.izzo@osumc.edu