In November 2011 the Nisonger Center thanked Pamela and Marc Gertz for their generous gift of $100,000 through The Ohio State University Neuroscience Campaign. The gift is an endowment wherein we will receive the annual interest (approximately $5,000 per year). The funds will support the projects and initiatives within our Early Childhood Education and Postsecondary Programs as well as permit us to continue providing quality programs and services into the future.

Pamela and Marc Gertz serve as parent members of the Nisonger Consumer Advisory Council because their son has an autism spectrum disorder. Marc is a partner with the law firm of Goldman & Rosen, Ltd., in Akron. Both Pamela and Marc have been active in local community agencies in Northeast Ohio. Additionally, they are both members of Ohio State’s Neuroscience Campaign Committee.

Pamela and Marc are both Ohio State graduates. Pamela earned a bachelor of science in advertising. Marc earned a bachelor of science in manpower and industrial relations and received his JD from the Ohio State University College of Law.

Related links:
The Ohio State University Department of Neurology
Nisonger Early Childhood Education
Nisonger Special Education & Transition Services
Nisonger Consumer Advisory Council

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Researchers at Ohio State’s Nisonger Center are studying whether a particular non-stimulant typically used to treat children with attention deficit hyperactivity disorder can help children with autism. At the same time, researchers are also analyzing the benefits of a training intervention for parents of children with autism to help curb attention problems, hyperactivity and noncompliance.

In early March the Ohio State Medical Center Public Affairs and Media Relations office created a multimedia news release that included a video featuring interviews with Dr. Michael Aman, principal investigator of the study and director of research at the Nisonger Center. Over the next two months, the release had reached more than 5 million people nationwide, including three airings in top 10 TV markets (New York, Los Angeles and Philadelphia) and five airings in competitor markets. TV airings on Ohio News Network (ONN) resulted in statewide coverage in several regional and volume-building markets. It also received web coverage on Parents Magazine Online, WCBS-TV (New York) Online and WDIV-TV (Detroit) Online.

It would have cost the university an estimated $57, 901 in paid ads to get equal coverage and $173,704 in public relations value for comparable coverage.

Read more: http://nisonger.osu.edu/features/adhd-study

For more information about the study, go to http://nimh-charts.osu.edu or call 614-688-8214.

Broadcast quality video and sound bites are available at: http://bit.ly/w5eBFv

See related story in this issue: Accepting participants for clinical trials, surveys, other studies

Related links:
Ohio State Studies ADHD Drug, Parent Training for Autism
Research Unit on Pediatric Psychopharmacology at the Nisonger Center

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Young adults with autism are featured in an educational video released Dec. 13, 2011, that promotes fire and burn safety in the home to that particular at-risk population.

The “Safe Signals” project includes a video, workbook and vinyl clings with important home safety information for the kitchen, bathroom, bedroom, living areas and utility spaces. The vinyl clings that can easily attach to windows, mirrors and appliances reinforce these safety messages, providing the quick “signals” to be a constant reminder of safety.

“The focus of the project is to develop fire and burn safety at home for older teens and young adults with autism. To our knowledge no other resource quite like this exists for this population,” said Dr. Lisa Murray-Johnson, program director for patient education at the Ohio State University Wexner Medical Center. Murray-Johnson, who is executive producer and project developer, also created A Tale of “Safe Signals” blog.

The Ohio State University Health System Nursing Patient Education partnered with The Ohio State University’s Nisonger Center, The Ohio State University Medical Center’s Burn Center and Autism Speaks, the world’s largest autism research and advocacy organization, to create the educational materials aimed specifically for people with autism who are ages 18 to 26.

Rebecca Coffey, a nurse practitioner with Ohio State’s Burn Center, also served as a project developer for Safe Signals. Others team members include Pat Cloppert, project developer Nisonger Center; Diane Moyer, project developer Patient Education; Carrie Beyer, video director; Jaime Sierra, Columbus Division of Fire, firefighter and public education specialist; Jeff Siegel, Aspirations Director for Young Adults, Nisonger Center.

In addition, six young adults who have been diagnosed on the autism spectrum, participated in the video: Justin Rooney as the English narrator; Zoe Castro as the Spanish narrator; Seamus McCord as “Ben;” Thomas Robison as “Alex;” Alissa Mangan as “Karen” and Tommi Lee Johnson as “Jenna.”

Lisa Murray-Johnson, Pat Cloppert, Seamus McCord and Alissa Mangan appeared Dec. 14 in a promo for the project by Marcus Thorpe on NBC 4 WCMH-TV. See the video here: Autism & Fire Safety video.nbc4i.com

Read more: http://nisonger.osu.edu/news/safe-signals

Related links:
Safe Signals video
A Tale of Safe Signals blog by Lisa Murray-Johnson, Ph.D.
Ohio State University Health System Nursing Patient Education
Ohio State University Medical Center’s Burn Center
Autism Speaks

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Research shows that families caring for children with disabilities (FCDs) experience higher levels of family stress, curtailed employment opportunities, and diminished rates of general well-being than comparative families. Specifically, these stressors have a negative impact on the families’ economic and emotional well-being.

To fully understand and start to address these concerns, the Ohio Developmental Disabilites Council (ODDC) engaged the Ohio Colleges of Medicine Government Resource Center (GRC) to coordinate a team of academic researchers including Dr. Susan M. Havercamp from the Nisonger Center to study the emotional, social and economic impact on families who care for children with disabilities.

The ODDC-sponsored research included the following three unique studies that consider the impact on families who care for a child with a disability:

1. Caring for Children with Disabilities in Ohio: The Impact on Families;
2. The Social Interaction and Behavior Effects of Siblings who Reside in a Household with a Child with Disability; and
3. Evaluating Services for Families with Children with Disabilities

Briefs with the key findings of each of these studies as well as the full reports and accompanying video files of related focus groups are available on the GRC website. Key findings from these briefs include the following:

• FCDs self-report less annual income and have less employment security.
• FCDs experience greater personal financial strife.
• Siblings of FCDs are 1.6 to 2.0 times as likely to develop emotional and behavioral problems compared with children with typically developing siblings.
• FCDs tend to prefer those services that directly meet the needs of their child, regardless of whether the service is DD-related or non-DD-related.

See the full reports, videos and briefs here: http://grc.osu.edu/projects/disabledchildren/index.cfm

Contact Barry Jamieson at 614-366-0329 or email barry.jamieson@osumc.edu with any questions regarding the studies.

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Dr. Jane Case-Smith, chair of Ohio State’s Occupational Therapy Division and Nisonger Center LEND faculty member, received the 2012 President and Provost Distinguished Award for Faculty Service.

Read more: http://nisonger.osu.edu/news/case-smith-award

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The Ohio State University Office of Outreach and Engagement announced on April 16, 2012, that Shakespeare and Autism: Intervention in the Columbus Community is among four proposals receiving a 2012 Engagement Impact Grant.

This ground-breaking research project is a collaboration between the Ohio State/Royal Shakespeare Company (RSC) partnership, Ohio State Theatre and the Nisonger Center. Partners include Dr. Lesley Ferris, Theatre and OSU/Royal Shakespeare Co. programs; Dr. Marc J. Tassé, Psychology, Psychiatry and Nisonger Center; Mary Ey, Columbus Public Schools Student Support Services; and Amy Hess, Nationwide Children’s Hospital Autism Treatment Network.

The team will collaborate with Kelly Hunter, a leading RSC actress, who has worked with children and young people with autism spectrum disorder (ASD) for 20 years. Her signature approach, the Hunter Heartbeat Method, pairs the recitation of Shakespeare’s rhythmic language with physical gesture in a way that is accessible to those with ASD. Kelly launched the “Shakespeare and Autism” pilot project during a week in residence in Columbus in February 2012. Kelly joined forces with the Nisonger Center, a team of Ohio State theatre students and children with autism in a series of weekly workshops that will run through May 20. The project will culminate in a performance event where children and theatre students will showcase their work together.

The team’s achievement was recognized at the 9th Annual James F. Patterson Land-Grant University Lecture on Wednesday, May 16, at the Archie M. Griffin West Ballroom at the Ohio Union. On the same day, the OSU/RSC Program, the Nisonger Center and the Department of Theatre hosted a reception and presentation by Kelly Hunter on the 11th floor of the Thompson Library, 6:00-8:00 PM. See links below for more information.

Read more: Shakespeare and Autism Project Receives 2012 Engagement Impact Grant

Related links:
Office of Outreach and Engagement - 2012 Engagement Impact Grants
"Shakespeare and Autism" pilot project

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L to R: Tai Cornute, program coordinator, Office of Diversity and Inclusion; Dr. D’Andra Mull, chief of staff, Office of the Vice President for Student Life; Dr. Louise Douce, Assistant Vice President for Student Life; Dr. Javaune Adams-Gaston, Vice President for Student Life; LeDerick Horne; Lois Harris, director, Office of Student Life's Department of Disability Services; Dr. Margo Izzo, associate director, Nisonger Center; Katherine Betts, intercultural specialist, Office of Student Life’s Multicultural Center; Dr. Davida Haywood, director, Student Life’s Multicultural Center

LeDerick Horne presented the President and Provost’s Diversity Lecture entitled, “Beyond Classification,” on April 24 at the Blackwell Inn in conjunction with The Ohio State University’s Multiple Perspectives Conference on Access, Inclusion & Disability.

In the third grade, LeDerick Horne was classified as neurologically impaired with significant learning disabilities. Despite this, he has defied labels and become a successful spoken-word poet, playwright, motivational speaker, entrepreneur and advocate for disability education. During his two-day visit Horne discussed the intersection between disability and diversity in several presentations at the conference, the Frank Hale Cultural Center and the Office of Student Life’s Department of Disability Services.

He was also a featured guest at the poetry slam during the 34th annual African American Heritage Festival. This event was a collaborative effort with the Office of Diversity and Inclusion.

Horne has worked with the Nisonger Center’s Special Education and Transitions Program for more than a year. He presented “Transition to College and Careers: The Power of Mentoring” in March 2011 and “An Open House for Current and Future TOPS Families” at the Frank Hale Center in Nov. 2011. At both events he discussed the importance of transition to college and/or employment and the strategies that work to support learning and achievement for students with disabilities.

You can sample LeDerick Horne’s poetry on iTunes; download a poem by LeDerick titled “Dare to Dream” in Doc Format or PDF Format; and find out more about his life and work at LeDerick's website. Horne also was featured in a profile by Jason Kane on March 19, 2012, as part of a PBS NewsHour series on the role of learning disabilities in America’s dropout crisis.

“LeDerick’s frustrated mother had just accused him of not knowing the alphabet, and the he responded with a perfect performance of the alphabet song. Then came this awkward moment: She picked up a legal pad, wrote something on it and asked what it was. To LeDerick, it was just a blank page and squiggles, so he stared…” Find the rest of the segment, Poetry from a 'Neurologically Impaired' Life.

In part, the Multiple Perspectives Conference is made possible thanks to the generosity of the Ethel Louise Armstrong Foundation Endowment Fund and these other sponsors:

• The Ohio State University Office of Diversity and Inclusion
• The Ohio State University Office of Student Life’s Department of Disability Services
• The Ohio State University Disability Studies Program
• The Ohio State University Diversity and Identity Studies Collective
• The Ohio State University Wexner Center for the Arts
• The Ohio State University Wexner Medical Center
• Columbus Advisory Council on Disability Issues

Related links:
President and Provost's Diversity Lecture & Cultural Arts Series
The Ohio State University Multiple Perspectives Conference on Access, Inclusion & Disability
Nisonger Center Special Education & Transition Services

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Editor’s note: This article by Ann Robinson and Marilee Martens, PhD, appeared in the AUCDigest December 2011 issue.

Photo from 2011 holiday party

The Williams Syndrome Program at Nisonger Center was established in 2007 and hosts one of eight Williams Syndrome Clinics in the country. The clinical team, including multiple LEND faculty members and trainees, provides comprehensive multidisciplinary evaluations and consultations for approximately 25-30 children and teenagers per year. Initial visits include an exam by a physical therapist, occupational therapist, genetic counselor, and speech-language pathologist. Pediatric fellows from Nationwide Children’s Hospital, where the clinic is housed, gain valuable experience in the evaluation and treatment of patients with Williams syndrome. Because of the cardiovascular issues that commonly appear in these patients, adjacency to the Heart Center at NCH is helpful for monitoring blood vessel integrity and high blood pressure issues throughout adolescence. Williams syndrome patients frequently have renal issues that can receive treatment through the hospital, where they place a strong focus on urogenital disease research, or be referred to a specialist in their own locality. The Nisonger team also evaluates and makes recommendations concerning educational and psychosocial issues that often come up in the planning stages of a treatment and lifestyle plan for a child with a developmental disability.

Focus on research innovation

Innovation in research is also one of the goals of the Williams Syndrome Program, with LEND trainees helping develop and assist in multiple projects. Ranging from medical and social to technological needs, typical goals are to investigate the causes of behaviors and explore applications of results and trends discovered in previous studies. Current assignments investigate distinctive brain functions in Williams syndrome patients, novel data tracking methods, and ways to link the unique strengths and challenges of students with Williams syndrome in the classroom with electronic learning resources. Trainees are able to pilot research projects using direct clinical experience and individually report on outcomes in national forums. Former LEND Developmental Behavioral Pediatric Fellow Daisha Seyfer (2011) presented on the use of ADHD medications in Williams syndrome and the use of melatonin in Williams syndrome at recent medical conferences. Researchers continue to look for new environmental and behavioral treatments for anxiety that can complement advancements in drug therapy. The Nisonger Clinic is committed to providing the newest information on psychotropic medicines and Williams syndrome, so that caregivers may have progressive options. Program director Dr. Marilee Martens says that future research areas are directly related to clinic patients to ensure that the clinic stays productive and user-friendly for families.

Social events important part of program

Williams Syndrome Program events give children, teens and adults with Williams syndrome regular opportunities to meet as a group and hone social skills. These events also give LEND trainees a chance to participate in activities with the families. Parents enjoy meeting the graduate student trainees and appreciate the opportunity to share more about Williams syndrome. Organizers put together a program for each event in order to encourage discussion and sharing of information. Parties this year included a screening of the film Embraceable, a documentary about Williams Syndrome; future plans include having a speaker from the Bureau for Children with Medical Handicaps (BCMH), a health care program in the Ohio Department of Health, discuss funding opportunities to help parents pay for needed services. This year the program also participated in fundraising during Williams Syndrome Week, May 2012.

For more information and upcoming research opportunities, contact Dr. Marilee Martens at martens.22@osu.edu.

See related stories in this issue:
LEND faculty, staff, trainees volunteer for 2012 Legislative Advocacy Day
Nisonger LEND hosts Ohio MCH Training Programs Joint Trainee Poster Symposium at Ohio State
Current and former Nisonger trainees receive recognition, participate in activities

Related links:
AUCDigest article
Nisonger Williams Syndrome Program
Nisonger Center LEND Program
Nationwide Children’s Hospital
Bureau for Children with Medical Handicaps

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Free one-hour classes taught by professors at the Nisonger Center and Ohio State for parents of young children with special needs were offered at the Franklin County Board of Developmental Disabilities’ Early Childhood Education and Family Center in Columbus, Ohio.

• Paula Rabidoux, PhD, CCC-SLP, director of training and outreach at the Nisonger Center and co-director of the LEND program, presented “Early Language and Literacy: Activities for Parents” on Feb. 7, 2012.
• Diane Sainato, PhD, professor of special education at Ohio State, presented “Project RETOLD: Enhancing the Language Development of Very Young Children” on Feb. 21.
• Marcia Nelms, PhD, RD, clinical professor in the medical dietetics division at Ohio State’s College of Medicine, presented “Joys of Feeding and Nurturing a Healthy Family” on March 14.
• Jane Case-Smith, PhD, professor and chair of Ohio State’s occupational therapy division and Nisonger LEND faculty member, presented “Picky Eating: What Are Some Ways I Can Get My Child To Eat More Foods?” on April 3.
• Kathy Lawton, PhD, director of Nisonger’s early childhood education program and assistant professor of special education, presented “Strategies for Playing and Engaging With Your Young Child” on April 24.
• Andrea Witwer, PhD, clinical assistant professor of psychiatry, adjunct assistant professor and Nisonger Center psychologist, presented the final class May 15 on “Potty Training.”

See details and printable flyers on all parent education classes here: http://nisonger.osu.edu/features/parent-education

Related links:
Nisonger Early Childhood Education Program
Franklin County Board of Developmental Disabilities

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April is Autism Awareness Month, and April 2, 2012, was World Autism Awareness Day. We started raising awareness back in February by announcing the date for the Nisonger Autism Institute, featuring Dr. Samuel L. Odom, to be held on June 26, 2012. In early March the Ohio State Medical Center Public Affairs and Media Relations office created a multimedia news release promoting the Nisonger Center study to determine whether training parents or taking ADHD medication is more effective for helping children on the autism spectrum. Two months later the release had reached more than 5 million people nationwide. See related story in this issue »

In late March we posted an announcement on our Facebook page about the Autism Speaks “Light It Up Blue” campaign for World Autism Awareness Day on April 2. In early April we announced the date for the Shakespeare and Autism reception and presentation by Kelly Hunter on May 16, co-sponsored by Ohio State’s OSU/Royal Shakespeare Company Program, the Nisonger Center and the Department of Theatre, and later distributed invitations to the event. On April 16, The Ohio State University Office of Outreach and Engagement announced that the Shakespeare and Autism: Intervention in the Columbus Community project is among four proposals receiving a 2012 Engagement Impact Grant. See related story in this issue »

We forwarded to the Nisonger community Amy Harmon's opinion piece in The New York Times Sunday Review April 8, 2012, which provided an important overview of the recent CDC report on autism prevalence and the issues it raises about diagnosis and treatment of ASD.

Dr. Tom Fish, director of social work and family support, presented “Autism and Stress in Families,” an educational program for the Southeastern Ohio Center for Independent Living at Ohio University-Lancaster on April 19. We helped publicize an author event for Following Ezra April 24, in which Tom Fields-Meyer spoke about his memoir of a father's experience raising his son with autism.

We announced Central Ohio Autism Awareness Week April 23-29 and Autism Awareness Day, held at the Ohio Statehouse on April 26. This event was presented by Autism Speaks, Autism Society of Central Ohio and Autism Society of Ohio. On April 25 we posted a link to NBC4’s The Autism Puzzle and helped promote their online Live Chat with experts in the autism community. Dr. Karen Ratliff-Schaub, Nisonger Center's medical director, presented a Families with Autism Medical Lecture on April 26, hosted by the Nationwide Children’s Hospital’s Autism Treatment Network.

Finally, we helped promote the inaugural Autism Speaks National Conference to be held in Columbus Aug. 3-4, 2012, for which The Ohio State University Wexner Medical Center is a partner. Registration deadline is July 20; early registration has been extended to June 22. A limited number of fee waivers are still available for families who might be interested. More information, complete brochure and forms are available at the website below.

Related links:
Nisonger Autism Institute 2012
Ohio State Studies ADHD Drug, Parent Training for Autism
Nisonger Center Shakespeare and Autism event invitation
Shakespeare and Autism Project Receives 2012 Engagement Impact Grant
Autism Speaks National Conference

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More than 370 people with disabilities, family members, professionals and others packed the Ohio Statehouse Atrium in Columbus to kick off the 2012 Legislative Advocacy Day on May 8, 2012.

Volunteers included Nisonger Center LEND faculty and staff Dr. Paula Rabidoux, Pat Cloppert, Sherry Feinstein and Ann Robinson; and LEND trainees Caitlin Lantier, Tiasha Letostak and Kelly Tanner. Karen Edwards, a member of Nisonger’s Community Advisory Council (CAC), led a group of volunteers from the University of Cincinnati UCEDD/LEND.

CAC member Carolyn Knight, executive director of the Ohio Developmental Disabilities Council, welcomed the crowd. Department of Developmental Disabilities Director John Martin spoke about “Employment First.” Micah Hetrick, an employee with disabilities, and Sue Hetrick, a parent, shared their personal stories. Self-advocate Mark Seifarth, member of Ohio Developmental Disabilities Council, spoke about “Getting Your Voice Heard.”

The advocates talked to their legislators about one of two important issues that are part of Gov. John Kasich’s budget bill: the Employment First Initiative and Visitability (wheelchair accessibility). CAC member Sue Willis of the AXIS Center in Columbus coordinated the event.

The 2012 Legislative Advocacy Day was funded by the Ohio Developmental Disabilities Council under the Developmental Disabilities Assistance and Bill of Rights Act. Co-sponsors included the Ohio Association of County Boards, Ohio Legal Rights Service, Ohio Statewide Independent Living Council, Autism Society of Ohio, Ohio Provider Resource Association, Ohio State Nisonger Center and the Cincinnati Children’s Hospital and Medical Center (University of Cincinnati UCEDD).

Ohio DD Council Executive Director Carolyn Knight addresses the crowd at the 8th Annual Legislative Advocacy Day in the Atrium of the Ohio Statehouse on May 8, 2012. Photo © Adam Herman / OACB

Mark Seifarth of the National Council on Disabilities (with Ohio DD Council Executive Director Carolyn Knight and DODD Director John Martin) addresses the crowd at the 8th Annual Legislative Advocacy Day in the Atrium of the Ohio Statehouse on May 8, 2012. Photo © Adam Herman / OACB
It was standing room only at the 8th Annual Legislative Advocacy Day in the Atrium of the Ohio Statehouse on May 8, 2012. People with disabilities and their allies from across the state traveled to speak with legislators about issues affecting people with DD. Photo © Adam Herman / OACB

See related stories in this issue:
Nisonger LEND hosts Ohio MCH Training Programs Joint Trainee Poster Symposium at Ohio State
Current and former Nisonger trainees receive recognition, participate in activities

Related links:
Nisonger Center LEND Program
Ohio Developmental Disabilities Council
Ohio Association of County Boards
Ohio Legal Rights Service
Ohio Statewide Independent Living Council
Autism Society of Ohio
Ohio Provider Resource Association
Cincinnati Children’s Hospital Medical Center (University of Cincinnati UCEDD)

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Here’s the lineup of speakers and topics we welcomed during the 2011-2012 academic year:

• Jan. 25: Stephen Petrill, PhD – Understanding Genetic Heterogeneity in Autism and Related Intellectual Disabilities
• April 4: Vladimir Sloutsky, PhD – Early Categorization: What Is the Mechanism and What Develops?
• April 18: Kathy Lawton, PhD – Teacher-Implemented Joint Attention Intervention: Pilot Randomized Controlled Study for Preschoolers
• May 2: Marc J. Tassé, PhD – Intensity of support needs – a more useful construct than IQ & adaptive behavior
• May 16: Susan Havercamp, PhD – The Impact of Disabilities on Families
• May 23: Monali Chowdhury, MA – Conducting a Successful Faculty Job Search
• May 30: Monali Chowdhury, MA – Predictors and Outcomes of Problem Behavior in Autism Spectrum Disorders: A follow-up study

Nisonger’s IDD Psychology Program is designed to produce research-oriented scholars prepared to accept academic and other major leadership positions in the field of intellectual and developmental disabilities. It is one of seven graduate degree program areas of Ohio State's Department of Psychology. Contact Michael.Aman@osumc.edu or 614-688-4196.

Related link:
Nisonger Psychology Graduate Training in IDD

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The Nisonger Brown Bag series, now located in 230 McCampbell Hall, offers the opportunity for discussion and exchange on topics related to the goals and mission of the Center. The series features notable speakers across professional disciplines from local to international experts. Everyone is invited to attend these Brown Bag presentations.

Here are the presenters and their topics for 2011-12:

• Oct. 19, 2011: Murugu Manickam, MD – Medical Issues in Genetic Disorders – Model for P4 Medicine
• Nov. 16, 2011: Shawn E. McCandless, MD – Prader-Willi Syndrome: A New Paradigm for Treating Genetic Disease
• Jan. 18, 2012: Karrie Shogren, PhD – Self-Determination in Adolescents with Disabilities
• March 21, 2012: Mary Fristad, PhD, ABPP – Multi-Family Psychoeducational Psychotherapy (MF-PEP) for Children with Autism Spectrum Disorders (ASD)
• April 18, 2012: Yona Lunsky, PhD – The Importance of Data Linkage to Understand the Health Needs of Adults with Intellectual and Developmental Disabilities: Lessons from the H-CARDD Program
• May 10, 2012: Renee Cameto, PhD – How Are Youth with Disabilities Doing? A Report from the National Longitudinal Transition Study-2 (NLTS2)
• May 16, 2012: 2nd Annual Nisonger Center Research Expo – posters presented by faculty, staff and trainees in the last year

Presentations from past seminars are available on the Nisonger Seminar Archive [see link below].
See related story in this issue »

Contact Susan.Havercamp@osumc.edu at 614-68 5-8724 or Ann.Robinson@osumc.edu at 614-685-6551.

Related link:
Nisonger Seminar Archive

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Dr. Yona Lunsky is a graduate of the Nisonger Center’s IDD Psychology Program who is now an associate professor in the Department of Psychiatry at the University of Toronto. She is head of the Dual Diagnosis Research Program at the Centre for Addiction and Mental Health, and an adjunct scientist at the Institute of Clinical Evaluative Sciences in Toronto, Canada.

Her research focuses on the mental and physical health of adults with IDD and their families. Lunsky spent the first 10 years of her career doing primarily clinical research and the next 10 years on health systems research. Her current project combines both approaches in a cost-effective way to understand the health inequities caused or facilitated by social or access issues.

On April 18 Lunsky delivered a Nisonger Brown Bag presentation entitled, “The Importance of Data Linkage to Understand the Health Needs of Adults with Intellectual and Developmental Disabilities: Lessons from the H-CARDD Program.” Her slide presentation is available as a PDF file on the Nisonger Seminar Archive webpage.

She discussed the utility of using administrative data to document “the big picture”: population-based rates of health status and health service use, such as in the Canadian Hospitalizations Study and the CIHR Crisis and Emergencies Study, comparing the experiences of people with IDD to the general population. She showed that using existing administrative data is cost-efficient and can complement clinical research with smaller sample sizes. Lunsky also illustrated how she has used larger datasets to advance policy and practice in Ontario and the process of linking datasets to best understand the needs of the IDD population. This approach has led to the Health Care Access Research and Developmental Disabilities (H-CARDD) program.

See related stories in this issue:
Brown Bag series welcomes guest speakers, 2nd research expo
Current and former Nisonger trainees receive recognition, participate in activities

Related links:
Nisonger Center LEND Program
Nisonger Seminar Archive

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In this issue we highlight the accomplishments of several current and former Nisonger Center trainees.

Former LEND trainee and physical therapy resident Lindsay Alfano co-authored an article, “Knee extensor strength exhibits potential to predict function in sporadic inclusion-body myositis,” in the Feb. 2012 issue of the journal Muscle & Nerve. She is on the developmental physical therapy team at Nationwide Children’s Hospital.

Marie Crawford, former LEND parent trainee, and LEND faculty parent advocate Pat Cloppert presented “Transitioning to Adulthood – What’s Next for Your Child?” an educational program for the Southeastern Ohio Center for Independent Living at Ohio University-Lancaster on Jan. 10. Marie is now vice president of the Autism Society’s Central Ohio Chapter.

Congratulations to Ohio State’s College of Social Work and Nisonger LEND trainee Tamara Durr on her selection as a Columbus Schweitzer Fellow. Tamara's project is to address obesity-related issues among low-income families in the Greater Linden area.

This year’s LEND physical therapy trainee Natalie Goodrich published a Clinical Bottom Line commentary on a research article, “Comparison of motor and cognitive performance in infants during the first year of life,” in Pediatric Physical Therapy 2012;24 with Dr. Jill C. Heathcock from the School of Health and Rehabilitation Services. Natalie also contributed to two posters on cerebral palsy that will be presented at the annual conference of the American Academy for Cerebral Palsy and Developmental Medicine in Sept. 2012 with a team from Nationwide Children’s Hospital.

Dr. Yona Lunsky, a graduate of the joint MR/DD and Clinical Psychology program and former Nisonger trainee, was promoted to “Fellow” in the American Association on Intellectual and Developmental Disabilities. She is associate professor of psychiatry and head of the Dual Diagnosis Research Program at the Centre for Addiction and Mental Health and the University of Toronto, Canada.  See related story in this issue »

LEND trainees Kelly Tanner, Maggie Mehling and Allison (Tewell) Wasserman attended the Disability Policy Seminar 2012 in Washington, D.C. They are pictured here with Senator Tom Harkin (D-Iowa). On April 23 and 24, attendees heard from leading public policy experts, disability advocates and Congressional staff discussing current key policies important to the disability community. On April 25, attendees and more than 500 other advocates met their Congressional delegation and delivered a unified message that persons with disabilities must have equal opportunity to participate in our economy and society, and receive the necessary services and supports. Photo credit: Crystal Pariseau/AUCD

See related stories in this issue:
LEND faculty, staff, trainees volunteer for 2012 Legislative Advocacy Day
Nisonger LEND hosts Ohio MCH Training Programs Joint Trainee Poster Symposium at Ohio State

Related links:
Nisonger Center LEND Program
Nisonger Center IDD Psychology Program

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Our forays into digital media continue to help us extend our reach.

The lead article in the Summer/Fall 2011 issue of NisongerNews summarized feedback from the redesigned Nisonger Center website and NisongerNews surveys, as well as statistics from the first 5½ months of our Facebook page. During the six-month period from Nov. 1, 2011, through April 30, 2012, The Ohio State University Nisonger Center Facebook page posted 75 stories, an average of 12.5 per month. We continue to repost most stories to the OSU and OSUMC internal Yammer.com websites.

The number of “Likes” increased to more than 300. Gender of users is 70% female and 30% male. The age group with the most users is still 25-34 years, followed by 35-44, 18-24, 45-54 and 55+. Users come from 31 countries in addition to the United States (up from 15) and use 16 languages (up from 6). The maximum total reach was 1,324 users during the week of March 27-April 2, reflecting World Autism Awareness Day and the Autism Speaks “Light It Up Blue” campaign.

• Alex Sawyers posted this recommendation: “Where my education all began back in 1987.” Alex was a student in our Early Childhood Education program.
• Peter Bossley posted this recommendation: “Great people here!”

LAN manager and webmaster Steve Rosensweig says that our Facebook postings over the last year have definitely increased the traffic on our website page: unique site visits are up 3.49% so far this year compared to all of 2011.

Related links:
Nisonger Center website home page
Nisonger Center website feedback survey
NisongerNews current and archived issues
Nisonger Center Facebook page

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The Nisonger Center is piloting a TOPS (Transition Options in Postsecondary Settings) program for students with intellectual disabilities. Students receive instructional support through “academic coaches,” employment support through “job coaches” and daily living/recreational support through “life skill coaches.” A story in the previous issue of NisongerNews [TOPS and VRP3 programs featured in DD Quarterly article by Bauer and Izzo] pointed to an article about transitions programs by Drs. Bill Bauer and Margo Vreeburg Izzo that appeared in the Fall 2011 issue of DD Quarterly. The article featured Colin Schaffer, one of the TOPS students, who is also the son of Dr. Amy Shuman, a parent member of Nisonger’s Consumer Advisory Council.

Colin appears in a video as a paid student assistant at the Prior Health Sciences Library. The video shows Colin as he sorts and delivers mail, shelves journals, and scans and sorts library books as requested by faculty, students and staff.

Dr. Izzo wishes to thank the library staff who support Colin and the Ohio Rehabilitation Services Commission who fund the job development and coaching for Colin. Contact: Margo.Izzo@osumc.edu or 614-685-3190.

Related links:
Transition Options in Post Secondary Settings for Students with Intellectual Disabilities
Nisonger Center expands employment programs for students with intellectual disabilities
DD Quarterly Fall 2011 issue
Nisonger Consumer Advisory Council
Prior Health Sciences Library
Ohio Rehabilitation Services Commission

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Ashley Nemeth uses an iPad to enhance her poster presentation.

On May 22, 2012, Nisonger LEND faculty and trainees hosted the first Ohio Maternal and Child Health Training Programs Joint Poster Symposium at The Ohio State University Wexner Medical Center.

Participants included faculty and fellows from all three of Ohio’s MCH Training Programs: the Developmental and Behavioral Pediatric Training Program at Rainbow Babies & Children’s Hospital in Cleveland, the LEND program at Cincinnati Children’s Hospital Medical Center, and the Nisonger LEND program. More than 60 faculty and trainees from a variety of MCH disciplines presented posters on the culmination of their research and leadership projects. State agency representatives Shawn Henry, Ohio Center for Autism and Low Incidence (OCALI) executive director, and Jody Fisher from the Ohio Interagency Work Group on Autism along with Marc J. Tassé, Nisonger Center director, facilitated a panel discussion with trainees on ways to integrate research, evidence-based practice and policy.

Natalie Goodrich, PT, shares her poster with Dafni Noam of Nisonger ECE.

Additional attendees included Maureen Crossmaker from Ohio Legal Rights Service (Ohio’s protection and advocacy agency), Monty Kerr from the Ohio Department of Developmental Disabilities, Kay Treanor from the Ohio Developmental Disabilities Council and Crystal Pariseau from the Association of University Centers on Disabilities.

Posters addressed a variety of topics:

• Transition from Pediatric to Adult Health Care Systems
• Picky Eaters Club
• Using Electronic Data Collection in a Comprehensive Cerebral Palsy Clinic
• Development of a Cultural Competency Toolkit
• Fracture Rates in Adults with Neurofibromatosis Type 1
• Hearing Loss in Neonates with Down Syndrome

For more information, contact karen.edwards@cchmc.org or paula.rabidoux@osumc.edu.

See related stories in this issue:
Williams Syndrome Program at Nisonger Center moves into fifth year
LEND faculty, staff, trainees volunteer for 2012 Legislative Advocacy Day
Current and former Nisonger trainees receive recognition, participate in activities

Related links:
Nisonger Center LEND Program
Maternal and Child Health Training Program
Pediatric Developmental-Behavioral Fellowship (Rainbow Babies & Children’s Hospital, Cleveland)
Cincinnati Children’s Hospital Medical Center (University of Cincinnati UCEDD) LEND Program
Ohio Center for Autism and Low Incidence (OCALI)
Ohio Interagency Work Group on Autism
Ohio Department of Developmental Disabilities
Ohio Legal Rights Service
Ohio Developmental Disabilities Council
Association of University Centers on Disabilities

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Drs. Mike Aman, PI, and Gene Arnold, Co-PI, received $137,680 from Jubilant Clinsys/Supernus Pharmecuticals for Randomized, Double-Blind, Placebo-Controlled, Dose-Ranging Study to Evaluate the Efficacy and Safety of Molindone Hydrochloride Extended-Release Tablets as Adjunctive Therapy in Children with Impulsive Aggression Comorbid with ADHD. The grant started Aug. 19, 2011, and ends Aug. 18, 2012.

Drs. Mike Aman, PI, and Gene Arnold, Co-PI, received $36,000 from Jubilant Clinsys/Supernus Pharmecuticals for Open-Label Extension Study to Evaluate the Safety of Molindone Hydrochloride Extended-Release Tablets as Adjunctive Therapy in Children with Impulsive Aggression Comorbid with ADHD. The grant started Sept. 12, 2011, and ends Sept. 11, 2013.

Dr. Tom Fish, PI, was awarded $35,000 from the Columbus Foundation to support the Next Chapter Book Club. This is a community inclusion, literacy and social support program for adults with intellectual and developmental disabilities. The grant covers Jan. 1 through Dec. 31, 2012.

Dr. Margo Izzo, Co-PI, collaborated with colleagues at Ohio State’s Center for Learning Excellence (CLEX): Drs. David Julian, PI; Melissa Ross, Co-PI; and Dennis Sykes, Co-PI. They received $116,699 from the Ohio Rehabilitation Services Commission for Vocational Rehabilitation Comprehensive Statewide Needs Assessment. The project assessed the vocational rehabilitation needs and identified and documented evidence in support of progressive policies and practices that improve services and outcomes for Ohioans with disabilities. The project ran from Oct. 17, 2011, to April 30, 2012.

Drs. Karen Ratliff-Schaub, PI, and Susan Havercamp, Co-PI, received $85,999 from the Administration on Developmental Disabilities (ADD) of the Health Resources and Services Administration (HRSA) for Real Action in Ohio; Resources, Education, Alignment, and Linkages. It will prepare future physicians with the knowledge and skills to recognize, screen for, and treat ASD and other developmental disabilities; and to provide family-centered, culturally competent care for children and adults with ASD and other developmental disabilities. The project runs from Nov. 28, 2011, to June 30, 2013.

Dr. Diego Solis, PI, was awarded $5,000 from Delta Dental for a Community Mini-Grant Program. Funds will be used to purchase dental materials and supplies for the clinic to provide quality dental care to all patients from Jan. 1 through Dec. 31, 2012.

Dr. Marc J. Tassé, Dr. Lesley Ferris (Theatre and OSU/Royal Shakespeare Co. programs), Mary Ey (Columbus Public Schools Student Support Services) and Amy Hess (Nationwide Children’s Hospital Autism Treatment Network) received a 2012 Engagement Impact Grant of $37,251 from Ohio State’s Office of Outreach and Engagement to support Shakespeare and Autism: Intervention in the Columbus Community. The study will begin autumn 2012 and continue through spring 2015.  See story in this issue »

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The Nisonger Center is accepting participants for clinical research trials as well as requesting volunteers for surveys and other studies. See details and contact information below.

Research Unit on Pediatric Psychopharmacology

Ohio State’s RUPP at Nisonger engages in pharmacological, psychiatric, behavioral, nutritional and alternative research in children and adolescents with autism spectrum disorders (ASD), ADHD, and other childhood disorders. RUPP is accepting participants with ASD or ADHD for these clinical trials:

• Children with Hyperactivity and Autism Research Treatment Study (atomoxetine and parent training in behavior management; ADHD symptoms in ASD, including Asperger’s) -- (See also CHARTS Website)
• Cholesterol in ASD: Characterization and Treatment (cholesterol test and treatment if needed)
• Preschool Parent Management Training Study (parent training in behavior management for preschoolers with ASD and behavior problems)

All evaluations and treatments are free, and some reimbursements and prizes are provided. Contact Caroline.Sansbury@osumc.edu at 614-685-3200 or Pamela.Sayre@osumc.edu at 614-688-8214.

Down syndrome survey

The Nisonger Center is conducting a study of the health status and access to health care of adults with Down syndrome. This information will help us learn more about specific risk factors and special medical needs of persons with Down syndrome. The online health questionnaire will take approximately 15-20 minutes to complete. All answers will be anonymous and confidential. Participants will receive a $5 gift card and a chance to win a Wii video game system in a raffle. Contact Matthew.Grover@osumc.edu at 614-685-3195.

Restricted and repetitive behaviors and psychiatric symptoms in children with ASD

Elizabeth Stratis, IDD Psychology graduate student, is conducting a study of the relationship between restricted and repetitive behaviors and psychiatric symptoms in children and adolescents with autism spectrum disorders. Parents of children and adolescents with ASD are asked to complete a demographics form and four questionnaires about their child. Participants will receive a $10 gift card.

Contact Elizabeth.Stratis@osumc.edu at 614-685-3215 or Luc.Lecavalier@osumc.edu at 614-685-8722.

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We want to thank everyone who participated in the Nisonger holiday party on Dec. 1 at the Greek Orthodox Church. Approximately 65 people had a great time celebrating the holidays with colleagues, sang and danced to a little Karaoke, and enjoyed some delicious food. Again, we thank our Social Committee members who donated their time and energy in organizing this fun event: Jillian Ober, Quinn Montgomery, Shelly Brokaw, Bianca McArrell, Ella Cox, Ashley Lefeld, Dr. Susan Havercamp, Becky Selegue and Kim White.

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Perhaps you have a new office or clinic space. You probably have a new conference room. Most likely, you have a new telephone and fax number. And with new things come new challenges, such as water and air quality and HEAT. But the end is near… and new beginnings await us.

A story in the previous issue of NisongerNews traced the history and progress through Nov. 2011 of the McCampbell Hall renovation project (“McCampbell Hall renovation continues”). Here’s an update of where we are so far:

New space completed

• New faculty offices and in suite 371 were completed and occupied in January.
• Conference room 250 was completed in February with a mounted projector and screen.
• New one-story gym on the second floor was completed and ready for use with new equipment in March. The Toy and Technology Library also moved to its new space.
• Conference room 230 was completed in March with a mounted projector and screen. We now have individual Outlook calendars available to schedule conference rooms 186, 230, 250 and 371N.
• New clinical/research space on the third floor was completed in March with recording capability (each room equipped with cameras). We can also schedule these rooms with their own Outlook calendars: 332, 334, 336, 338, 342, 344, 346, 348, 350 and 352.
• Restrooms on the first and third floors reopened in March; those on the second floor remain under construction.
• New staff offices in suite 241, where conference rooms 235 and 243 used to be, were ready for occupancy in April.

New services installed

• Signs placed along 10th Ave. and Dodd Dr. help direct patients and visitors while construction fences are blocking our regular signs.
• Signs indicating that 'ALL NISONGER CLINICS ARE OPEN' assist clinical patients to find their way through the building during construction.
• The refrigerator and microwave were moved from room 302 into the 371 suite in January. The copier was moved to its new location in the 395 suite.
• New main fax number was announced March 20: 614-366-6373.
• New room signs were installed on the third floor in March.
• Snack and beverage vending machines were relocated to the first floor east corridor near room 186.
• Windows were replaced on the south side of the building to comply with LEED certification for environmental efficiency. Window replacements on the east side are still under way.
• Exterior doors are unlocked from 6:45 AM to 6:45 PM Monday through Friday. The northeast entrance is now equipped with a Matrix badge reader. Those needing access after normal hours will need to swipe their Medical Center ID badge through the Matrix reader for entry. Conference rooms 230 and 250 will also use badge readers for secure access, instead of the numerical combination locks used previously.
• Everyone will have transitioned to the new OSUMC Cisco phones by the second week of June; requiring new long-distance codes.
• A template for Nisonger Center letterhead with new phone and fax numbers is available on the NiCe Employee Resources website page.
• The south elevator was offline for repairs in May, but service has been restored. The north and south middle elevator shafts, which have never been functional, are being removed. One car is being added to the South end. Elevators should be updated and operational by the end of June.
• Remaining McCampbell Hall occupants will arrive in July 2012, and demolition of Cramblett Hall will begin.

Air quality concerns addressed

After increasing concerns regarding McCampbell Hall air quality, Ohio State's Department of Environmental Health and Safety and an independent company (Lawhon and Associates, the environmental engineers responsible for monitoring the gym during abatement and renovation) performed air sampling tests and evaluations in January. A generator was moved away from the building following the detection of higher than usual levels of carbon monoxide. Despite appearances, all solvent products used throughout the renovation are considered 'green' for LEED certification and deemed safe; MSDS reports are available for review in the construction office. As a result of increased levels of dust particles impacting those with breathing issues or allergy sensitivities, EHS recommended closing office doors to the main corridors as much as possible. Although the dust issue hasn’t been completely eliminated, contractors are doing their best to keep dust at a minimum. EHS and project managers attended the All-Staff Meeting on Feb. 29 to discuss additional details and answer questions.

Water quality concerns addressed

As a result of concerns about the water in McCampbell Hall raised at the All-Staff Meeting on Feb. 29, we began providing alternate water sources and requested the water to be tested. Environmental Health and Safety technicians took water samples from three separate locations. Test results indicated the presence of trace amounts of lead. We met with Medical Center, EHS and construction/project managers on March 23 and announced the following action plan:

• Out of an abundance of caution, it is best not to drink the tap water or use it to cook food. However, EHS indicated that the water is safe to use to wash hands, water plants and clean. We provided additional hand sanitizers throughout the building and in ECE classrooms.
• All water fountains were shut down and a ‘flush’ of water systems in the entire building was performed, including water lines coming in from main supply, service/connection lines and individual fixtures.
• In addition to tests provided by EHS, an independent agency (Lawhon and Associates) performed comprehensive tests of biologicals, metals and PH levels throughout the building. OSUMC contractors worked with our Dental Clinic to provide an alternative water source to maintain business operations. OSUMC also provided additional bottled water coolers with drinking cups throughout the building.
• The plumbing was replaced in all areas where testing indicated lead. Water testing will continue until final reports are released. Meanwhile, we continue to drink bottled water.

Miscellaneous updates

• Contractors abated the second floor south flooring over the holiday weekend May 26-28. This work involved removing the asbestos in the mastic beneath the floor tiles.
• Late May: The two air-handlers being replaced on the south side are responsible for about 50% of the cooling for the entire building. This has resulted in excessive heat inside many offices and meeting areas! The construction management team installed mini-air-conditioning units and large fans that may be helping in some locations. One of the air-handler/chillers on the south end has been installed and is functioning; the other should be up and running within the next few weeks.
• McCampbell Hall will be equipped with an intercom system, hopefully by July 1. This will help when evacuations of the building are needed that do not relate to fires.

The estimated completion date for the McCampbell Hall renovation is June 30, 2012. Tamara Hager, our departmental project liaison, attends weekly meetings with Project ONE staff and provides progress updates through emails and a SharePoint website. Contact Tamara.Hager@osumc.edu at 614-685-3196.

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Congratulations to these Nisonger staff who have received BRAVO stickers in appreciation from colleagues and customers and recognition for their years of service at All-Staff meetings on Nov. 30, 2011, and Feb. 29, 2012:

Bravo Milestones

• Steve Rosensweig – 150
• Ella Cox – 75
• Arden Dandrea – 50
• Kyle Jamison – 50
• Lindsay Gantzer –50
• Tamara Hager – 25

Please contact Human Resources with questions regarding the BRAVO Program, or visit https://onesource.osumc.edu/sites/recognition/Pages/default.aspx.

Years of Service

• Shelly Brokaw – 5 years
• Vanessa Martin – 5 years
• Shannon Prince – 5 years
• Sara Thiessen – 5 years
• Steve Rosensweig – 10 years
• Kalin Palmer – 15 years

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• Nisonger Autism Institute 2012 featuring Dr. Samuel L. Odom, June 26, 8 AM – 12 PM, Blackwell Hotel and Conference Center, Columbus. Registration is closed. For waiting list, contact Ann.Robinson@osumc.edu. http://nisonger.osu.edu/ai2012
• ICare4Autism International Autism Conference, Aug. 1-2, International Conference Center, Jerusalem, Israel. Preconference workshop July 31. Early Bird Special extended to June 15. http://www.icare4autism.org/events/2012-international-autism-conference/
• Annual Ohio APSE/OAAS Conference “Employment First: Transitions,” Sept. 13-14 in Columbus. Nominations for annual awards due by 5 PM (EDT) July 13; contact Dianna Walters at 740-652-7230 or dwalters@FairfieldDD.com.
• SOCIL and Michael Collier’s iPads & Apps for Autism Golf Scramble Fundraiser, July 20, 9 AM, Homestead Springs Golf Course, 5888 London Lancaster Rd, Groveport. Register by July 9 at www.socil.org; Linda McDonald 740-689-1494 x12 or Michael Collier 614-833-3086.
• DSACO’s Dr. Kvitko Golf Classic, July 27, 2 PM, Royal American Links and Bent Tree Golf Club. Register at www.royalamericanlinks.com 740-965-1215 or www.benttree.com 740-965-5140.
• Autism Speaks, Wexner Medical Center and Nationwide Children’s Hospital national conference for families and professionals, “Treating the Whole Person: Providing Comprehensive Care for Children and Adolescents with ASD.” Aug. 3- 4, Hilton Columbus at Easton. http://www.autismspeaks.org/science/science-news/autism-speaks-national-conference-families-and-professionals
• Pelotonia 2012, Aug. 10-12, various locations and routes. http://pelotonia.org/ride/
• Nisonger Center Staff Appreciation Picnic, Aug. 19, 2:30–5:30 PM, Goodale Park Shelter House.
• ADA Coordinator’s Training Conference Aug. 20-21, Ambridge Events Center in Portland, Ore. Early registration (before July 29) is $140. Registrations received after July 29 will be $175. For more information and online registration, go to www.adacoordinator.org.
• American Heart Association’s Start! Heart Walk 2012, Aug. 25, Columbus Commons. Contact Michelle Ranly at columbuswalk@heart.org. Register to join Team Nisonger here: http://centralohheartwalk.kintera.org/faf/search/searchTeamPart.asp?ievent=995618&team=5092777
• All-Staff Meeting, Aug. 29, noon-1 PM, Room 230 McCampbell Hall.
• DSACO Buddy Walk, Sept. 23, Columbus Crew Stadium, 9 AM. www.columbusbuddywalk.org
• Columbus Walk Now for Autism Speaks, Oct. 14, Huntington Park. www.WalkNowforAutismSpeaks.org/Columbus
• OCALICON 2012, Nov. 14-16, Greater Columbus Convention Center. http://conference.ocali.org/

See other news and events lists at OneSource; use your OSU Medical Center ID to log in. Send notices of upcoming events to Nisonger News editor Vicki Graff by email at graff.42@osu.edu. We are now a semi-annual publication. Future issues will appear in April and October. Deadlines are March 31 and Sept. 30.

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(October – December 2011, January – March 2012)

Audra Bork started as an adult behavior support specialist on December 5. She grew up in South Dakota but relocated to Ohio 10 years ago. Audra earned a bachelor's degree in human development/child and family studies and a master's degree in human development and counseling from South Dakota State University. She previously worked at Absolute Care and Franklin County Probation. Audra and her family enjoy camping and relaxing at home with their “four-legged children.”

Dr. Kristall Day joined Special Ed and Transition Services as a temporary employee on April 15, 2011, to coordinate a summer program but started as a program manager on Oct. 1. She earned a PhD and MA in special education from Ohio State. She previously worked as a high school intervention specialist and a middle school teacher for students with emotional and behavioral disorders. Kristall is also a certified principal for grades 5 through 12 and a Board Certified Behavior Analyst. Her primary areas of research include applications of direct instruction, curriculum and assessment for adolescents with disabilities, and data-driven organizational change. Kristall enjoys writing, performing and recording music. Most of all, she enjoys spending time with her husband and two children.

Jessica Grieger was hired as a dental assistant in the Johnstown Road Dental Clinic on March 26.

Leah Holland started on Dec. 28 as an assistant early childhood specialist in ECE. She earned a BA in speech and hearing science from Ohio State and will begin the special education master's early childhood intervention specialist program at Ohio State in the fall. Leah likes to spend time with her two older sisters and just became an aunt recently. She is involved with miracle league in the summers (GO RED SOX) and serving food/playing with the children at the YWCA homeless center.

Nathan (Kyle) Jamison started as office associate in Dual Diagnosis Oct. 3. Kyle was profiled in the Summer-Fall 2011 issue of NisongerNews: http://nisonger.osu.edu/nisongernews/6-12/new-hires

Dafni Noam joined ECE as an early childhood specialist teacher assistant on March 27. She moved to Columbus two years ago from Israel with her husband, who is working on his PhD at Ohio State. Dafni earned a bachelor’s and a master’s degree in occupational therapy from the University of Haifa in Israel. She worked in Israel as an OT for almost two years and hopes to be able to practice in the United States soon. Dafni says, “I’ve been working and volunteering with individuals with disabilities ever since I was 16. Working with kids with disabilities is my passion. I enjoy celebrating every little success with them and feel honored I am able to contribute.” Her hobbies are crafting and cake decorating.

Ann Robinson was hired as program assistant in LEND on Oct. 24. She earned a BS in consumer science and business from Ohio State and will pursue a degree in public policy from the John Glenn School starting fall semester. Ann previously worked for Macy’s in operations. Her interests include vegan cooking, modern dance, French New Wave cinema and spending time with family in Detroit.

Jessica Starr was hired as an adult behavior support specialist on March 12. She earned a BS in communications and an MS in counseling from Southwestern College in Santa Fe, N.M. She has previously worked in a therapeutic setting with adult sex offenders and as an equine therapist for adolescents with developmental disabilities. Jessica has two daughters, 6 and 8 years old. The three of them enjoy outdoor activities including traveling, hiking and gardening.

Stacy Whitted started as an early childhood specialist teacher assistant in ECE on March 25. She earned a BS in early childhood education from Bowling Green State University. Stacy previously worked as a preschool teacher in Dublin, Ohio. Her hobbies include scuba diving, camping, hiking and reading. She also spent a year traveling around and working in Australia before moving back to Ohio to be near her family. Stacy hopes to start graduate studies in early childhood intervention at Ohio State this winter.

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Farewell to Dr. Bill Bauer, who completed his postdoctoral research on a semester sabbatical leave from Marietta College.

Farewell to Elizabet Geva Lopez, a PhD candidate from the University of Barcelona in Spain, who completed her six-month stay as a visiting scholar.

Farewell to Bianca McArrell, who left Special Ed and Transition Services in December to accept a position as program manager in the College of Medicine’s Medical Student Research Education Program.

In a study of risperidone (Risperdal) and behavioral therapy in children with pervasive developmental disorders, children who have severe behavior issues respond better to medication if it is paired with training for their parents. An article in the Feb. 2012 Autism Today quotes senior author Dr. Lawrence Scahill, professor at Yale University School of Nursing and the Child Study Center, and a report in the February issue of Journal of the American Academy of Child & Adolescent Psychiatry. Dr. Michael Aman, director of research, was principal investigator for the portion of the study that was conducted at the Nisonger Center. This study was also among the most popular stories that appeared on Disability Scoop Feb. 24, 2012.

Dr. Michael Aman was interviewed March 30 on WTTE/TV-28 “Good Day Columbus” promoting the CHARTS study: Children with Hyperactivity and Autism-Research Treatment Study investigating the efficacy of the medication, Strattera, and parent training in behavior modification for children with ASD and ADHD symptoms aged 5-14. This coverage resulted from pitching efforts by OSU Medical Center Public Affairs and Media Relations, and a multimedia news release available on the Web at http://medicalcenter.osu.edu/mediaroom/releases/Pages/Ohio-State-Studies-ADHD-Drug,-Parent-Training-For-Autism.aspx.
See related story in this issue »

New research out of Kaiser Permanente Northern California finds that Ritalin and other drugs used to treat attention deficit disorder are safe for use in adults. Dr. Gene Arnold, professor emeritus of psychiatry, was featured on ABC News Radio Dec. 12, 2011. Read more: http://nisonger.osu.edu/news/arnold-radio

Dr. Gene Arnold was also featured in SheKnows.com about kids and ADHD on April 3, 2012. Is your child just active or does he have ADHD? How can you really tell if it’s time for an evaluation? Read more: http://www.sheknows.com/parenting/articles/954543/adhd-overdiagnosed-and-overmedicated

LEND faculty member Helen Carey co-authored a review article in Pediatric Physical Therapy 2012;24 with Dr. Toby Long from Georgetown University on “The pediatric physical therapist’s role in promoting and measuring participation in children with disabilities.”

LEND faculty parent advocate Pat Cloppert and Marie Crawford, former LEND parent trainee, presented “Transitioning to Adulthood – What’s Next for Your Child?” an educational program for the Southeastern Ohio Center for Independent Living (SOCIL) at Ohio University-Lancaster on Jan. 10.

Brian Cloppert

Pat Cloppert’s son Brian Cloppert, who is a member of our Aspirations program, was pictured on page 4 of the Franklin County Board of Developmental Disabilities 2011 Annual Report and 2012/2013 Program Year Calendar. Brian Cloppert has worked at the Ohio State James Cancer Center as a supply coordinator since 2007. He receives services from the FCBDD Employment Services Department.

Dr. Tom Fish, director of social work and family support services, along with Dr. Sarah Hall, assistant professor at the Columbus Center of Ashland University, presented a webinar on March 13, 2012, entitled, “Involving Siblings in the Transition Process for Young Adults with Disabilities.” View the webinar and PowerPoint slides from their presentation here: http://autismnow.org/about-us/what-we-do/webinars/#mar12

Dr. Tom Fish also presented “Autism and Stress in Families,” an educational program for SOCIL at Ohio University-Lancaster on April 19.

Next Chapter Book Club: A Model Community Literacy Program for People with Intellectual Disabilities, co-authored by Drs. Tom Fish and Paula Rabidoux, director of training and co-director of the LEND program, with program managers Jillian Ober and Vicki L. W. Graff, is featured on the Manuals and Toolkits page of the Autism Speaks website. Read more: http://www.autismspeaks.org/family-services/resource-library/manuals-and-tool-kits

An article about the Nisonger Center Next Chapter Book Club program’s Sports Club appeared on pages 2-3 in the Autumn 2011 issue of “Pipeline Quarterly” Vol. 4, Issue 4, a publication of the Ohio Department of Developmental Disabilities. A photo promoting the story appeared on page 6 of the DODD’s “Pipeline” newsletter on Jan. 4, 2012. Read more: http://nisonger.osu.edu/news/ncbc-sportsclub

A photo of Lindsay Gantzer, office intern, was featured in the Season’s Greeting message from the Down Syndrome Association of Central Ohio in December. A photo of Lindsay with Senator Sherrod Brown (D-OH) appeared on page 2 of the January/February 2012 issue of DSACO’s “Keeping Up” newsletter. Another photo of Lindsay appeared on page 9 of the Spring 2012 issue of DSACO’s “Keeping Up” newsletter, announcing the Shifting Perspectives photo exhibit about Down syndrome at the Dublin Arts Council. Read more: http://www.dsaco.net/documents/25649/2e6b6d8e-767b-4035-ace3-52b335b5e536

Amy Hess, former LEND family faculty, and medical director Dr. Karen Ratliff-Schaub presented “Effective Family Centered Care - Autism Treatment Network (ATN),” an educational program for SOCIL at Ohio University-Lancaster on Jan. 26.

Dr. Margo Izzo, associate director and program director of Special Education and Transition Services, presented “Pathways for Employment” as part of the Down Syndrome Association of Central Ohio’s Transition and Employment Conference Jan. 24. Her photo appeared on page 2 of the January/February 2012 issue of DSACO’s “Keeping Up” newsletter.

Drs. Margo Izzo and Charles R. Moseley moderated “Transition to Employment: Evidence-based Policies and Practices” on May 24, a free webinar sponsored by the Association of University Centers on Disabilities (AUCD) and the National Association of State Directors of Developmental Disabilities Services (NASDDDS).

Kyle Jamison, Dual Diagnosis clinic receptionist who will start medical school this summer, performed the role of Judah in “Joseph and the Amazing Technicolor Dreamcoat” May 10-12 at LDS Institute of Religion.

Taylor Krcek, a graduate of Ohio State’s MSW program and a former Next Chapter Book Club facilitator, is a doctoral candidate at the University of Tennessee. She gave a presentation at the College of Social Work on April 13 on the use of iPads to deliver evidence-based interventions to children with autism, conduct research and collect data.

Dr. Marilee Martens, Williams Syndrome Program director, was quoted in a CNN story on Jan. 18, “Mom Claims in Blog That Disabled Child Denied Transplant.” Read more: http://bit.ly/wD8h6Q

Dr. Karen Ratliff-Schaub, medical director, co-director of the LEND program and director of Nationwide Children’s Hospital Child Development Center, presented a Families with Autism Medical Lecture on April 26 at the Ohio Center for Autism and Low Incidence (OCALI) in Columbus, hosted by the Autism Treatment Network (ATN) at Nationwide Children’s Hospital. Her topic was “What is a Developmental-Behavioral Pediatrician? Do I need one for my child?”

A news story about the Nisonger Center’s toy library aired Dec. 22, 2011, on WYTV-TV (ABC) in Youngstown, Ohio. Mary Jo Wendling, occupational therapist, is the director. Here is a link to the story: http://bit.ly/vcV4aC s3.amazonaws.com

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